Frisby, C., Manchaiah, V., Dawood, N., Nieman, C., & Swanepoel, D.W.
Disability and Rehabilitation, In Press.
Publication year: 2025

Background: Stigma has been reported as a key barrier to hearing aid uptake. This scoping review explores evidence of reported stigma associated with hearing loss and hearing aids in low- and middle-income (LMI) settings.

Method: Four databases were searched to identify studies published up to 6 November 2024. Studies mentioning stigma in relation to hearing loss or hearing aids in LMI countries or LMI settings within high-income countries were included. A narrative synthesis was conducted.

Results: 29 studies were included, with 26 conducted in LMI countries and three in LMI settings within high-income countries. Two main domains were identified: (a) stigma experienced by individuals with hearing loss, ear disease, or hearing aids; and (b) experiences of stigma reported by direct communication partners. Four themes emerged from affected individuals, including (a) internalized stigma, (b) social stigma, (c) cultural beliefs, and (d) barriers to help-seeking. Communication partners’ themes included (a) perception of individuals with hearing loss, (b) impact on relationships, and (c) cultural beliefs. Unique theme in LMIs is cultural beliefs that hearing loss is associated with witchcraft and curses.  

Conclusions: A limited number of studies were identified but emphasized cultural and religious beliefs as important contributing factors to stigma in LMIs.