Manchaiah, V., Pyykkö, I. & Pyykkö, N.
The Journal of International Advanced Otology, Ménière Federation members. The Journal of International Advanced Otology, 16(1), 13-17. DOI: 10.5152/iao.2020.7563
Publication year: 2019

Objectives: The current study explored the Internet and social media use in people with Ménière’s disease (MD).

Materials and Methods: The study used a retrospective design and included data of 465 people with MD from the Finnish Ménière Federation (FMF) database. The study sample included 346 females (i.e., about 75%) with over 95% of them being middle-aged or older adults. The data were collected from a web survey that used questions about demographic information, Internet and social media use by people with MD when establishing the computer-based peer support program for MD.

Results: Over 90% of the respondents reported using the Internet. 70% of the respondents said they use the Internet to find information about MD, and 47% of the respondents said they trust the information on the Internet.

Conclusion: Internet and social media are frequently used by people with MD to gather information about their condition. Hence, it is essential to ensure appropriate and accurate information is available via Internet websites and social media.